Ireland’s 4th International Children’s
Palliative Care Conference:

Contemporary Challanges in the Care of Children with Complex and Palliative Care Needs
An Interdisciplinary Conference

Thursday 21st - Friday 22nd November 2019

National University of Ireland Galway

info@cpcconf.ie

#CPCCONF2019

Children’s Palliative Care Conference 2019

“Contemporary Challenges in the Care of Children with Complex and Palliative Care Needs”

4th International Collaborative Children’s Palliative Care Conference
Institute for Lifecourse and Society, National University of Ireland, Galway

21st and 22nd November 2019

info@cpcconf.ie

**Draft Programme Subject to Change**

Day 1 Thursday 21st November 

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9:00am - 10:00am

Registration

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10:00am - 10:30am

Opening Address & Aims of the Conference

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10:30am – 11:30am

Symptom Management in Children with Severe Neurological Impairement

Dr Julie Hauer, Paediatrician , Boston Children’s Hospital

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11:30am - 12:15pm

Managing Transitions Through Good Communication

Bryan Nolan, Communications specialist on End of Life Care, formerly of The IHF.

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12:15pm - 12:30pm

Panel Discussion 

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12:30pm - 1:30pm

Lunch & Poster Viewing 

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1:30pm - 2:15pm

Cannabinoids; Science versus Society 

Prof Tony O’Brien, Marymount University Hospital and Hospice 

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2:15pm - 3:00pm

Research Abstract Oral Presentations

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3:00pm - 3:45pm

Freedom of Movement in Children’s Palliative Care

Dr Fiona McElligot, Children’s University Hospital, Temple St.

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3:45pm - 4:00pm

Panel Discussion

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4:00pm - 4:30pm

Tea / Coffee / Comfort Break

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4:30pm - 6:30pm

“A Love that Never Dies” 

Documentary film followed by Q&A sessions 

Jane Harris & Jimmy Edmonds

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7:00pm

Close Day 1 

Evening Networking Event in Monroe’s Galway

Details to Follow.

Day 2 Friday 22nd November 

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8:15am - 8:45am

Registration & Welcome Tea / Coffee 

 

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8:45am - 9:00am

Welcome Address  

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9:00am - 9:40am

What Factors Contribute to a Successful Transition from Children’s to Adult Services for Young Adults with Life-Limiting Conditions?

Dr Helen Kerr, Queen’s University, Belfast

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9:40am - 10:20am

Needs of Adolescents and Young Adults with Cancer

Dr Scheryll Alken, St James’s Hospital and Our Lady’s Children’s Hospital, Crumlin

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10:20am - 10:50am

Coffee Break & Poster Viewing 

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10:50am - 11:30am

UN Convention on Rights of Persons with Disabilities and the Implications for Young People with Palliative Care Needs.

Cliona ni Bhailis, Department of Law, NUIG

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11:30am - 12:00pm

Palliative Care and the Living Teenager.

Fionnbar Walsh, Father of Donal Walsh

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12:00pm - 12:30pm

Panel Discussion

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12:30pm - 1:30pm

Lunch 

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1:30pm - 2:15pm

Influencing and Achieving Policy Change in Children’s Palliative Care

Andy Fletcher, CEO Together for Short Lives.

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2:15pm - 3:15pm

Research Abstract Oral Presentations

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3:15pm - 3:30pm

Comfort Break 

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3:30pm - 4:15pm

Certainty of goals: When the Outcome is Uncertain for Children with Severe Neurological Impairment

Dr Julie Hauer, Boston Children’s Hospital

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4:15pm - 4:30pm

Final Comments & Close 

Dr Joanne Balfe, LauraLynn Ireland’s Children’s Hospice

Tyrone Horne, Clinical Nurse Co-ordinator for Children with Life-limiting conditions