Children’s Palliative Care Conference 2019
“Contemporary Challenges in the Care of Children with Complex and Palliative Care Needs”
4th International Collaborative Children’s Palliative Care Conference
Institute for Lifecourse and Society, National University of Ireland, Galway
21st and 22nd November 2019
**Draft Programme Subject to Change**
Day 1 Thursday 21st November
9:00am - 10:00am
Registration
10:00am - 10:30am
Opening Address & Aims of the Conference
10:30am – 11:30am
Symptom Management in Children with Severe Neurological Impairement
Dr Julie Hauer, Paediatrician , Boston Children’s Hospital
11:30am - 12:15pm
Managing Transitions Through Good Communication
Bryan Nolan, Communications specialist on End of Life Care, formerly of The IHF.
12:15pm - 12:30pm
Panel Discussion
12:30pm - 1:30pm
Lunch & Poster Viewing
1:30pm - 2:15pm
Cannabinoids; Science versus Society
Prof Tony O’Brien, Marymount University Hospital and Hospice
2:15pm - 3:00pm
Research Abstract Oral Presentations
3:00pm - 3:45pm
Freedom of Movement in Children’s Palliative Care
Dr Fiona McElligot, Children’s University Hospital, Temple St.
3:45pm - 4:00pm
Panel Discussion
4:00pm - 4:30pm
Tea / Coffee / Comfort Break
4:30pm - 6:30pm
“A Love that Never Dies”
Documentary film followed by Q&A sessions
Jane Harris & Jimmy Edmonds
7:00pm
Close Day 1
Evening Networking Event in Monroe’s Galway
Details to Follow.
Day 2 Friday 22nd November
8:15am - 8:45am
Registration & Welcome Tea / Coffee
8:45am - 9:00am
Welcome Address
9:00am - 9:40am
What Factors Contribute to a Successful Transition from Children’s to Adult Services for Young Adults with Life-Limiting Conditions?
Dr Helen Kerr, Queen’s University, Belfast
9:40am - 10:20am
Needs of Adolescents and Young Adults with Cancer
Dr Scheryll Alken, St James’s Hospital and Our Lady’s Children’s Hospital, Crumlin
10:20am - 10:50am
Coffee Break & Poster Viewing
10:50am - 11:30am
UN Convention on Rights of Persons with Disabilities and the Implications for Young People with Palliative Care Needs.
Cliona ni Bhailis, Department of Law, NUIG
11:30am - 12:00pm
Palliative Care and the Living Teenager.
Fionnbar Walsh, Father of Donal Walsh
12:00pm - 12:30pm
Panel Discussion
12:30pm - 1:30pm
Lunch
1:30pm - 2:15pm
Influencing and Achieving Policy Change in Children’s Palliative Care
Andy Fletcher, CEO Together for Short Lives.
2:15pm - 3:15pm
Research Abstract Oral Presentations
3:15pm - 3:30pm
Comfort Break
3:30pm - 4:15pm
Certainty of goals: When the Outcome is Uncertain for Children with Severe Neurological Impairment
Dr Julie Hauer, Boston Children’s Hospital
4:15pm - 4:30pm
Final Comments & Close
Dr Joanne Balfe, LauraLynn Ireland’s Children’s Hospice
Tyrone Horne, Clinical Nurse Co-ordinator for Children with Life-limiting conditions