Ireland’s 4th International Children’s
Palliative Care Conference:

Contemporary Challenges in the Care of Children with Complex and Palliative Care Needs
An Interdisciplinary Conference

Thursday 21st - Friday 22nd November 2019

National University of Ireland Galway

info@cpcconf.ie

#CPCCONF2019

Children’s Palliative Care Conference 2019

“Contemporary Challenges in the Care of Children with Complex and Palliative Care Needs”

4th International Collaborative Children’s Palliative Care Conference
Institute for Lifecourse and Society, National University of Ireland, Galway

21st and 22nd November 2019

info@cpcconf.ie

**Draft Programme Subject to Change**

Day 1 Thursday 21st November 

}

9:00am - 10:00am

Registration

}

10:00am - 10:20am

Opening Address & Aims of the Conference

 

Professor Ciarán Ó hÓgartaigh, President of NUIG

Introduced by Claire Quinn, Programme Director of the MHSc Adult Palliative and Children’s Palliative Complex Care Programme at NUIG 

}

10:20am – 10:40am

Nociceptive Cancer Pain: A Hypothesis Exploration of its Definition, a Debate to Redifine and Move Out of Chronic Pain 

Professor Dympna Waldron MD, Professor of Palliative Medicine, Consultant in Palliative Medicine Galway & Roscommon University Hospitals

}

10:40am – 11:30am

Symptom Management in Children with Severe Neurological Impairment

Dr Julie Hauer, Paediatrician , Boston Children’s Hospital, U.S.A

}

11:30am - 12:15pm

Managing Transitions Through Good Communication

Bryan Nolan, Communications specialist on End of Life Care, formerly of The IHF.

}

12:15pm - 12:30pm

Panel Discussion 

Dr Julie Hauer, Paediatrician , Boston Children’s Hospital

Bryan Nolan, Communications specialist on End of Life Care, formerly of The IHF.

Professor Dympna Waldron, Consultant in Palliative Medicine, UCHG

Tyrone Horne, Clinical Nurse Co-ordinator for Children with Life-limiting Conditions

}

12:30pm - 1:30pm

Lunch & Poster Viewing 

}

1:30pm - 2:15pm

Cannabinoids; Science versus Society 

Prof Tony O’Brien, Marymount University Hospital and Hospice 

}

2:15pm - 3:00pm

Research Abstract Oral Presentations

Magnolia House. New Building; New Palliative Care Service? 

Helen Queen, Lead Nurse Palliative Care & Bereavement Service, Birmingham Women’s and Children’s NHS Foundation Trust. 

Breaking Bad News: The Parents’ View  

Anne-Marie Jones, Medical Social Worker, Temple Street Children’s University Hospital  

Children with complex Health Needs: The Experience of Siblings

Marie Grant, RCN/RGN, Cork University Hospital

 

}

3:00pm - 3:45pm

Freedom of Movement in Children’s Palliative Care

Dr Fiona McElligott, Children’s University Hospital, Temple St.

}

3:45pm - 4:00pm

Panel Discussion

Dr Fiona McElligott, Children’s University Hospital, Temple St.

Prof Tony O’Brien, Marymount University Hospital and Hospice. 

Cathy Killeen, Irish Cancer Society.

}

4:00pm - 4:30pm

Tea / Coffee / Comfort Break

}

4:30pm - 6:30pm

“A Love that Never Dies” 

Documentary film followed by Q&A session moderated by Amanda Roberts, Irish Hospice Foundation. 

Jane Harris & Jimmy Edmonds, Documentary Film Makers, The Good Grief Project. 

}

7:00pm

Close Day 1 

Evening Networking Event in Monroe’s Galway

Monroes Tavern, Dominick Strret, Galway

Day 2 Friday 22nd November 

}

8:15am - 8:45am

Registration & Welcome Tea / Coffee 

 

}

8:45am - 9:00am

Welcome Address  

}

9:00am - 9:40am

What Factors Contribute to a Successful Transition from Children’s to Adult Services for Young Adults with Life-Limiting Conditions?

Dr Helen Kerr, Queen’s University, Belfast

}

9:40am - 10:20am

Needs of Adolescents and Young Adults with Cancer

Dr Scheryll Alken, St James’s Hospital and Our Lady’s Children’s Hospital, Crumlin

}

10:20am - 10:50am

Tea/Coffee Break & Poster Viewing 

}

10:50am - 11:30am

UN Convention on Rights of Persons with Disabilities and the Implications for Young People with Palliative Care Needs.

Cliona de Bhailis, Department of Law, NUIG

}

11:30am - 12:00pm

Palliative Care and the Living Teenager.

Fionnbar Walsh, Father of Donal Walsh

}

12:00pm - 12:30pm

Panel Discussion

Dr Helen Kerr, Queen’s University, Belfast

Cliona de Bhailis, Department of Law, NUIG

Dr Scheryll Alken, St James’s Hospital and Our Lady’s Children’s Hospital, Crumlin

Fionnbar Walsh, Father of Donal Walsh

}

12:30pm - 1:30pm

Lunch 

}

1:30pm - 2:15pm

Influencing and Achieving Policy Change in Children’s Palliative Care

Andy Fletcher, CEO Together for Short Lives.

}

2:15pm - 3:15pm

Research Abstract Oral Presentations

 

Reflections Following the Death of a Child in Hospital: A Qualitative Study into perspectives of the Multi-Disciplinary Team

Alison Cashell, Clinical Nurse Coordinator for Children with life limiting Conditions, CHI, Temple Street Hospital.

Supporting Children With Complex Needs at Home: Challenges for Advanced Community Care Nurses  

Cora O’Leary, Clinical Practice Specialist, Resilience Care

A Retrospective Review of the Perinatal Palliative Care Programme at a Large Teritary- Referral Maternity Hospital                

Caoimhe Healy, Final Year Medical Student, University College Cork

Identifying Rare Disease Reseach Priorities Through (RAinDRoP) A Rare Disease Reasearch Partnership                

Dr Suja Somanadhan, Assistant Professor in Children’s Nursing, Programme Director Children’s and General Registration Education Programme Stage 2 Co-ordinator (Children’s and General Nursing), UCD School of Nursing, Midwifery and Health Systems

}

3:15pm - 3:30pm

Comfort Break 

}

3:30pm - 4:15pm

Certainty of Goals: When the Outcome is Uncertain for Children with Severe Neurological Impairment

Dr Julie Hauer, Boston Children’s Hospital

}

4:15pm - 4:30pm

Final Comments & Close 

Dr Joanne Balfe, Consultant Paediatrician, LauraLynn Children’s Hospice and Children’s Health Ireland.

Tyrone Horne, Clinical Nurse Co-ordinator for Children with Life-limiting Conditions, Cork University Hospital.